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Oh…I’m autistic

Greetings, everyone! Today is apparently the day for a long(ish) post about things on my mind.

In late January, I was formally diagnosed as autistic, and it’s taken me a while to fully process it. Though I knew I had many traits and spent last year writing things down while I was on the waiting list for assessment, it still came as a bit of a shock to me.

I think I still had that small nugget of doubt, and when that was finally snuffed out, it sent me into a bit of a self-analytical spiral. I also had a massive meltdown where I simply couldn’t stop screaming — it’s an odd thing to have your body doing one thing while your mind is observing everything from a 3rd person view. And I was highly impressed at the sheer range of my voice. Honestly, I think I could give a banshee a run for their money, or a Camaar fish wife (if anyone gets that reference, I’ll give them a cookie).

I think the meltdown was not only realisation, but sheer frustration that it’s taken 28 years for people to see it, and one of my main thoughts was what would my life have been like if I’d known earlier? Would I have been bullied at school so much? Would I have even attended the schools that I did? Would I have had better advice on relationships and more understanding of why I can’t handle certain situations? Would I have felt so pressured to get a ‘real’ job that I accepted the first offer I got and spent three years struggling and pretending to be perfectly fine when I felt like hiding away and covering my hands over my ears through every shift?

But what I realised was that it doesn’t matter, because you can’t change the past. All you can do is look to the future. And I’m now in the process of getting the support I need.

I’ve also been suffering with anxiety and depression due to various other personal situations, and the whole lot combined has left me completely drained. However, I can’t live life as a complete recluse, and as much as I find it extremely difficult to talk to people — whether I know them or not — and experience a lot of sensory overload whenever I go out, I still have to do ‘basic’ things like going to the doctors or buying food.

I also know that as my poetry collection and my latest book are now out, I should be trying to promote them as much as I can, which includes going to spoken word nights. Which are nice in theory, as I get to listen to a lot of other artists, but not always so great in practice due to the sheer social nature of them.

Last night was one of those occasions, and not only was I uncomfortable the whole time, but after it was over, I felt like a group of bulbasaur had leechseeded me. I could barely walk properly, and my mind had died completely. Don’t get me wrong, I did hear some great poetry and got good encouragement for my own, but I honestly have to ask myself if that level of exhaustion, and the week or so of anxiety leading up to it, was really worth it.

Thing is, I don’t have an answer. I doubt I ever will. All I know is that one side of me wants to get up and perform at every one, while the other wants to stay home and play scrabble with my partner (who is a significant rock in my life and does all he can to keep me grounded when I feel like everything is beyond my control).

One of the definitely positive things I took away from last night was that I wasn’t the only one struggling to do what I do, as one of the other performers was autistic too. There was also a spoken word artist with ADHD and one who is Dyslexic. So the sheer amount of creativity neurodivergent people are capable of despite their struggles is something truly inspiring.

Anyway, thank you for continuing to support this little blog and my creative efforts. This post has been quite therapeutic, not only as a way of recovering from yesterday and other stuff, but also because I’m enormously anxious about a phone call I’m expecting (I wish people would give specific times for these things). But I’m sure I have rambled on long enough, so…

Kate out!

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3 thoughts on “Oh…I’m autistic”

    1. So far, it has. Which, in a way, is a sad thing, as it takes that much to get backup. Diagnosed or not, the struggles people on the spectrum (or anyone who’s neurodiverse) face are real, and society needs to start understanding that.

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